Riley is doing pretty good. She past her eat/drink/swallow food test that the occupational therapist gave her, and she freaked out when the applesauce came out...she was ravenous, and we had to prevent her from guzzling the juice way too fast. The poor girl must have been so hungry and thirsty. They have been monitoring her sodium levels very closely (they want to keep them up to keep pressure in the brain down) and also her hematocrit, which has been low. They finally decided it was too low and she will need a blood transfusion, a small amount, maybe 100 or 150 mL, which she will probably get tonight.
What else...
-1 more day in ICU
-more talk about whether she needs another surgery (fundoplication and G-tube for feeding).
-some days in a "regular" room to recover
-she needs to start eating and drinking, and most importantly, not vomit
-she needs to sleep...she keeps fighting it and the ICU has a lot of activity.
To follow up on Jenni's post, the little baby that was getting a transplant was so sweet and I was praying for her...but Jenni was not joking, her father was totally annoying
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We LOVE you and are following events every day. I was traveling and actually with G'pa and G'ma the last couple days, so of course they were keeping close touch with your dad as well. Everybody is praying...I included Riley on the BGC Friday prayer email that went out across the country last Friday.
ReplyDeleteWe LOVe LOVE LOVE you.
Uncle D, now back in Illinois
We are also following your blog very closely. It's wonderful to be able to fine tune our prayers so well. Thank you for communicating so well.
ReplyDeleteThanks for the update. We'll be glad for you to get back into a regular room. I'm sure you'll all sleep better then.
ReplyDeleteI cant stop thinking about you guys and praying for little RIley , she has been so heavy on my heart.Thanks so much for updating and letting us know what is going on.
ReplyDelete~Leilani
Thanks for the updates! Love you guys! Prayin for you Riley! Your cuz, Carla and fam
ReplyDeleteContinuing to pray for Riley and your family.
ReplyDeleteStill praying for Riley! Timmy prays every night for "wiley's tummy ache" (that's about all I could get him to wrap his head around!) and can't wait to see her!
ReplyDeletehugs, molly