Friday, March 13, 2009

HOME

We were able to bring Riley home this afternoon. 17 days at the hospital was enough. It feels weird to be at home, it makes all the events of the last 2 or 3 weeks seem even more like just a trip to the Twilight Zone. Riley is doing well, but still has 8 days left of the Deximethisone (steroids). They are making her crazy. She is moody, grouchy, needs to be in direct physical contact with us, will not let you put her down for even a second, she swats at everyone and grunts, sometimes starts slapping herself in the face. They also make her crazy hungry so she is still CONSTANTLY wanting something to eat and keeps saying "sna, sna, sna, sna, sna,sna" (snack). She will surely gain weight no problem now, the doctor is more concerend what her eating/appetite will be like once she is off the steroids. The whole hospital stay, all the side effects, it all seems like such a small price to pay for all the live-saving care Riley has recieved. I was trying to describe to Jenni today a feeling of almost not wanting to leave the hospital...I think it boiled down to feeling like I would do anything for my daughter. Or wishing I could do more, instead of her taking the brunt of it all. It was a feeling that going home was almost a luxury and I'd stay in there as long as it took (even in a shared room with the obnoxious, belching, beat-boxing guy).

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