We had a few sweet surprises from friends the week after my last post and it was very emotional. One of Riley’s teachers sent her a surprise gift- an adorable chocolate lab stuffy which made her smile. Of course I burst into tears because I am hyper-emotional.
A lovely friend dropped off delicious Indian food and a stuffy for Ry. I cried with her as she understands our bumpy road and knows the greater pain of suffering and losing a beautiful child to cancer.
Another wonderful family sent a beautiful basket filled with goodies, but also arranged for a few girls in Riley’s grade to make sweet gifts filled with her favorite goodies and encouragement. She was so happy and started crying after opening them all. It always feel good to be thought of and cared for.
We had her 3 month appointment and her scan is stable. No one expected much change at this appointment. Her 6 month scan in October will be more telling about the efficacy of chemo.
Her side effects are many, but they are manageable and don’t seem too bad when thinking about traditional chemo. BUT here’s the reality- it is so hard. She is doing well, but honestly she is just angry and upset a lot of the time. She’s just so frustrated and it hurts so much to watch her go through it all. I’m tired and we are only 4 months in. Another 20 months seems horrible. This is hard. Of course it is all worth it and we are so grateful. Please don’t misunderstand how grateful we are for her treatment plan, doctors, insurance, and the privilege to live so close to Stanford and have great comprehensive care. I just want it to go away and for her to be healthy.
The tears flow so easily now but I think that’s a good thing. I never want to hide how we are doing or how our journey is going. We are okay. We are so loved and taken care of.
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