I found this on the fridge this morning and it made me smile. Riley often writes little notes of encouragement on the mirror in her bathroom, her bedroom, or in common areas around the house. There is so much truth in this one. God loves us so deeply and gives us strength when we feel weak and tired. We have felt weary. Riley developed mouth sores and they have been uncomfortable. She was prescribed “magic mouthwash” which our insurance denied. It costs about $75. Seriously? They pay over $10,000 a month for her chemo but can’t pay for a simple mouthwash for a side effect? Thankfully, our health care team prescribed one of the ingredients and I was able to get the others over the counter and with some diluting and mixing I whipped up a batch for about $20. I think it’s been helping. She seems less uncomfortable these last two or three days. I also discovered that her hair is changing color! It’s totally growing in super blonde. This is yet another side effect but one she doesn’t mind as much! Her doctors said she is getting every side effect! Most only get a few things but they just keep on coming for us. Riley is in good spirits overall but feels lonely. She also explained that because she is taking oral chemo and not in the hospital that people don’t really understand that it is still hard. Even though she looks well she may really not be feeling well at all. I have been so thankful she has been open and communicative about how she is feeling. But I am so sad for her having to go through this. She is so brave and I am so proud of her. So, we stay strong in each other and in our loving God praying for no more growth and more good days.
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