6 month scan

 Jaron took Riley to the hospital yesterday for her appointments. The drive to the MRI and the MRI itself were described as "traumatic". They had to make an emergency stop on the way for the bathroom and arrived late. Her MRI was in the outpatient clinic and the staff was not as caring as in the past. Riley said it took the nurse 5 tries to get her IV. She was experiencing a lot of stomach discomfort and they had to stop the MRI two minutes in. Jaron thought it might have been more of a panic response due to not feeling good. More tears, but Jaron was able to talk her through it and she finished the scan. 

The later morning and afternoon brought some relief and her oncology appointment went well. They said her tumor is stable- there may have even been some very small shrinkage (0.2mm). Her symptoms have caused them to have her stop her medication for a week and then re-start at a lower dose. She is happy for the short break. Her echo and EKG went fine. 

I think it was an especially hard day for both of them. The reality of these appointments bring heightened emotions. Most days/weeks we can get through without thinking much about the reality. 

We have a neuro-surgery appointment next Wednesday so we should hear the final results of tumor board before or at that appointment. This is just a check in and there is no thought of surgery at this point. 

We keep on going; moving forward with hope.