Riley's Latest

Riley was admitted to the hospital on Monday. We knew this was coming, and we are happy to get on to the next step after trying everything else up to this point with no results. The main purpose of hospitalizing her is to get food in her via a NG tube through her nose. Placing the tube was pretty rough and so far she is throwing up everything she's eating. The tube gagging her is not helping any. We will keep trying to trickle liquid food in at a slow rate and overnight to see if that works. She had another upper GI radiology study this morning, which was more succesful than the last one and showed normal anatomy, but slow gastric emptying, but we already knew that. She will get an MRI of her brain, probably tomorrow. If the NG tube does not work she will need surgery to get a more permanent G-tube placed, and do a fundoplication.
She is in great spirits while she is not being poked and prodded, so we are so thankful for that. It's hard to hear all the other kids on this floor sounding so upset.
We are also very grateful for all of our friends and family who have offered to help in so many ways and for those who have committed to praying for her.