We took Riley to se the GI doctor again today for a weight check and to discuss her meds. We felt armed with information and questions after consulting with another doctor outside of Kaiser (thank you, Steve!!!). Unfortunately, Riley's weight has dropped further, 17 pounds 12 oz, her exact weight at 6 months old. (she is now 13 1/2 months) After much discussion we are down to a few options. We are starting her on 2 meds today. One is prevacid, an acid blocker which will help protect her esophagus from getting damaged by the stomach acid. The other, Reglan, is a med to help move food through her stomach at a faster rate so that hopefully if she does throw up, the food has already moved through and into the intestines.We are also mixing a calorie supplement into her food. We will try this for 2 weeks then return for another weight check.
At that point if the reglan is not working there is another med we can try for 2 more weeks. After 1 month if things have not improved she will have a scope to biopsy her intestines to check for allergies or other conditions that could not be picked up in a blood test.
These are our last options before a feeding tube would be necessary. Please pray for weight gain. Riley is definitely not getting the calories she needs and it is very noticeable in her daily activites. Please also pray for Jaron and I to be strong advocates for Riley.
Through this I have felt enormous peace that can only come from Jesus. I know He loves this little girl and we will continue to trust in him for her care.
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So glad to hear that the Lord is giving you guys peace and that you are trusting His faithfulness! We love you all and continue to pray regularly for the situation.
ReplyDeletethanks for the update, jenni. i have been thinking of your family so often and will continue to do so.
ReplyDeletepraying for all of you! Oh and I love the new look of your blog! funny that we almost picked the same one though, i have to say that you have excellent taste! :)
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