Just keep swimming

Just when you think you are settling in, things change! Chemo is NEVER predictable. Riley has had more stomach issues these last few weeks. Rash and acne seem to be stable but the stomach aches and diarrhea are off and on which makes it hard to plan ahead. She has always had a sensitive tummy so I knew that she would most likely suffer from some GI issues.
Ry will have her monthly labs this week and an oncology appointment on Wednesday. I do not anticipate any changes or new information. She has her big round of testing late July (MRI, echo, labs, oncology follow up) so we are just plugging along. The scans, heart echo, and an eye appointment (this chemo drug can cause some eye issues so they maintain regular checkups)  will be done every 3 months throughout treatment.
Jaron and Avery will take a camping trip up to Tahoe this week with some friends which will be a lovely time to rest and relax while Ry and I snuggle up here at home. This definitely does not feel like a regular summer, but we will continue to embrace the quality time together as a family which we have been so grateful for. ❤️

Settling In

Riley has been doing really well these last few weeks. She has settled into a great nightly routine- she is super responsible and we are so proud of her. Her side effects have lessened some with only occasional GI symptoms and a decrease in her scalp rash. Her main side effect continue to be acne, which of course does not make her happy at all! Her energy level is normal and she finished the school year strong. She was able to have an end of the year social distanced park date with 4 friends which really helped boost her spirits.
We continue to pray for good health and minimal side effects as we move into summer. We had to cancel our Italy/Tanzania trip for the summer but are hoping for some good camping experiences with the family and our new pup, Tucker!